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Office Location
Turner Syndrome Sociey
of Canada
30 Cleary Avenue, Room 9 Ottawa, ON K2A 4A1
Phone (613) 321-2267
Toll-free 1-800-465-6744
Fax (613) 321-2268
Email info@turnersyndrome.ca
Contact
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 Welcome to the Turner Syndrome Society of Canada!
Our non-profit charitable organization shares up-to-date medical information on Turner Syndrome to families, physicians and the public. We also provide local mutual support groups for individuals with TS and their families.
Browse our web site for the latest news or contact us with your questions. We are always looking for new members and volunteers.
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Turner Syndrome Health Information Day
June 8, 2013
CHEO, Max Keeping Wing, Room W 1380
Ottawa, Ontario
Free! Register today.
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 Survey - How do you use online tools for information about Turner Syndrome?
Let us know how you use online groups and chat to ask questions and find information about TS.
This Survey is only nine questions!
Survey closes June 17.
Thank you for participating!
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 Golf Tournament
June 29, 2013
at Club de Golf Touraine
in Ottawa-Gatineau
Fun for all – experienced or novice golfers.
Make up a foursome and join us!
More info - English French
Registration – English French
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Awareness Pins
Help us raise funds and awareness by purchasing our 2013 Awareness Pin.
Order your own by downloading this form.
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 Turner Syndrome Society of Canada
Photography Contest
Top Entries Album
About the photos. (PDF)
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 Turner Syndrome Society of the United States
2013 Annual Conference
Dallas, Texas
More information.
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 Turner Syndrome Society of Canada
32nd Annual Conference
Inn at Laurel Point
Victoria, B.C.
Conference Registration Now Open
April 19 – 21, 2013
Conference Program
Thanks and Acknowledgements
Speaker Biographies
Photo: Tourism Victoria, Robert Forbes.
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 Our online newsletter!
- Our newsletter is now available on line in French and English Editions! Check it out here for news about the Society’s activities, personal stories, and highlights from our conferences.
- Winter 2012 English (PDF)
- Winter 2012 French (PDF)
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What is important to you? Let us know!
Take our new online survey - it takes less than 15 minutes to complete.
For Canadians affected by Turner Syndrome or their family members (click on the appropriate links below):
Survey for Individuals with Turner Syndrome
Part One and Part Two
Survey for Family Members (two parts) Part One and Part Two
Thank you for participating! |
 Launch of our new video!
Click here
to see Women and Girls Living with Turner Syndrome on YouTube. |
Five Research Projects
Call for Participants
Turner Syndrome and Bone Health
Researchers at the University of Calgary are actively recruiting women ages 16 - 45 with Turner Syndrome to participate in a study examining bone health. The study is being conducted at the University of Calgary and expected time requirement is approximately 1 hour total. Contact ts.bonehealth@gmail.com or 403-220-3188 for further information. Read more
Stanford University:
Comprehensive Turner Syndrome Study
Researchers at Stanford University are looking for girls ages 3 – 11 years old with 45X, 46XX mosaic karyotypes to take part in a comprehensive research study of learning, behavior, genetics and brain development. Read more
Does Turner Syndrome Affect Number Sense?
Researchers in the Developmental Science Laboratory in the Psychology Department at the University of Waterloo are looking for participants: girls with Turner Syndrome between the ages of 6 years 0 months to 16 years 11 months, of all karyotypes. The experiment duration can either be one 1 hour or two 30 minute sessions. The following locations in Ontario; Toronto, London, Hamilton, Waterloo, Ottawa and adjacent areas. During the weekend of the conference recruitment and experimental runs will take place from April 19th-27th in Vancouver, Victoria, Kelowna and adjacent areas. Click here for further information or contact Kaitlin Portelli, 416-894-1541 , keportel@uwaterloo.ca.
X-Linked Genes for Social Cognition
Researchers at the Hospital for Sick Children in Toronto are looking for participants: girls 4 yrs. and older with 45,X karyotype and their families. Information letter.
Survey of Emerging Adulthood
Researchers at the University of Newcastle, Australia are looking for participants aged 18 – 30. Website. Survey Information.
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__ Featured News & Updates
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About the Turner Syndrome Society of Canada
The Turner Syndrome Society of Canada, a non-profit charitable organization, was founded in 1981 by an individual with TS who wanted to share experiences and information. It provides support services for individuals with TS and their families and disseminates up-to-date medical information to families, physicians and the general public.
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 Turner Syndrome Society of Canada 29th Annual Conference
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Recent Donations
We wish to express our sincere gratitude to:
Canadian Pediatric Endocrinology Nurses March 2012: sponsorship for 2012 conference
Hoffmann-La Roche
March 2012: sponsorship for conference and TSS organizational planning meeting
EMD Serono Canada
March 2012: sponsorship for conference and 2012 newsletters Eli Lilly Canada
November 2011: new video
Shopper’s Drug Mart/Parmaprix Life Foundation
August 2011: new website features and dedicated database software, for better feedback from our members.
Soulvation Project: organized Spaghetti Fundraising Dinner March 19, 2011 in Stratford, ON – allowed two SW Ontario families to attend the 2011 conference in Calgary.
Unitron Hearing Canada for support of our 2011 conference.
IODE Concern for Children Fund: 2009 and 2010, to further develop our web site, contact list of medical professionals, and reference library.
Saskatoon Yellowhead Cosmopolitan Club: donation of $800 April 2009
Ontario Trillium Foundation support of our Information Day Outreach Program through a two year grant from May 2007 to April 2009.
Sandoz Canada for ongoing support of our annual conferences and the 2008 London Information Day.
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